Development and psychometric testing of the bakas caregiving outcomes scale. Family caregivers of stroke survivors experience a variety of negative social, emotional, and healthrelated outcomes as a result of providing care objectives. The stroke survivors completed the barthel index and the geriatric depression scale. Assessing change in response to participation in the powerful tools for caregivers ptc program.
Caregivers sociodemographic characteristics, the oberst caregiving burden scale ocbs and the bakas caregiving outcome scale bcos. The ocbs and bcos were translated from english into arabic in accordance with guillemin et al. Burden scale for family caregivers in 20 european languages. Family caregivers are known to experience many negative outcomes as a result of providing care for a stroke survivor after discharge to the home setting bakas, 2009. By adhering to the principles of pragmatic trials, this trial is designed to inform typical u. Time and difficulty of tasks provided by family caregivers of stroke. For this part, we are interested in how confident you are that you can keep up your own activities and also respond to caregiving situations. The aim of this study was to validate the greek translation of the revised bakas caregiving outcomes scale bcos with a sample of informal caregivers of people with advanced cancer receiving outpatient palliative radiotherapy. Bakas and burgener 2002 found that difficulty with carrying out caregiving tasks was a strong predictor of emotional distress and other negative health outcomes in the stroke caregiver. Short version of the burden scale for family caregivers in 20 european languages with this scale, valid assessment of subjective burden among family caregivers is possible all over europe using the same questionnaire. Our objective was to assess the effectiveness of these teams with respect to client outcomes. The purpose of this study was to develop and psychometrically test the diabetes caregiver activity and support scale dcass, a measure of how difficult or easy caregiver activity and supportive behaviors are for family caregivers of persons with type 2 diabetes t2dm. The scale is scored by calculating the mean of all items answered with a score range of 0 to 4. The bakas caregiving outcomes scale bcos is an instrument designed to measure life changes in family caregivers of persons with chronic illness.
Ideas from aphasia caregiver and dementia caregiver groups page 5 of 6 reference list bakas, t. The responsibilities and challenges of caring for a loved one can place significant stress on the family caregiver. Psychometric testing of the developmental care scale for. Therefore, a distinction between the use of the terms, caregiving and caregiver, in the extant literature is warranted. Bakas caregiving outcome scale item means and percentages ratings of negative outcomes at 8 months after baseline item scores outcome measures include the bakas caregiving outcomes scale bcos and depression phq9. The original 10item bcos was improved by adding five items addressing. Issues such as quality of life are now widely used in clinical trials and in patient management for assessing morbidity and the impact of treatment. Living index across admission, discharge, and followup. Community stroke rehabilitation teams csrts provide a communitybased, interdisciplinary approach to stroke rehabilitation. Pdf validation of the revised bakas caregiving outcomes. This manuscript examines caregiver burden among a small sample of primary caregivers of stroke patients in jamaica.
Life changes and burden were measured using the bakas caregiving outcome scale bcos and the oberst caregiving burden scale ocbs, respectively results. Started in 1995, this collection now contains 6767 interlinked topic pages divided into a tree of 31 specialty books and 732 chapters. A change for the worst in caregivers was associated with improvements in functioning between admission and discharge p caregiver life changes were measured by the 15item bakas caregiving outcomes scale addressing changes in social functioning, subjective wellbeing, and physical health as a result of providing. Caregiver life changes were measured by the 15item bakas caregiving outcomes scale addressing changes in social functioning, subjective wellbeing, and physical health as a result of providing.
Perception of life change was measured using the bakas caregiving outcomes scale bcos, which measures change in social functioning, subjective wellbeing, and somatic health. Development and psychometric testing of the bakas caregiving. Evidence for stroke family caregiver and dyad interventions. The higher the score the more prepared the caregiver feels for caregiving. Join a caregiver support group eat a wellbalanced diet see your physician for a wellbeing checkup treat yourself to something fun laugh. The results in this study demonstrated that the zarit burden interview is a valid and reliable instrument for measuring the burden of caregivers of pwd in singapore. After each question, circle how often you feel that way. Anxiety and depression associated with caregiver burden in.
Many selfreport instruments have been developed to measure the caregiver s burden, needs, and their qualityoflife. Background the burden experienced by family caregivers is the most important caregiver related. The bcos scores increased consistently over time, showing significant differences at 6 months compared with 2 weeks mean difference. Validity and reliability of the zarit burden interview in. The scale was originally developed to measure life changes in family caregivers of stroke survivors, but has also been used in family caregivers of those with heart failure and a variety of other. Bcos is an acronym for bakas caregiving outcomes scale. Stroke caregiver outcomes from the telephone assessment core. Validation of the revised bakas caregiving outcomes scale. Griffin and colleagues conducted the family and caregiver experience study faces with caregivers n 564 of service members who incurred a tbi. Anxiety and depression were selfreported by the caregiver as a physician diagnosis.
Scared brief assessment caregiver anxiety here is a list of sentences that describe how people feel. The 15item bakas caregiving outcomes scale bcos measures caregiver life changes specifically as a result of providing care. An evaluation of the family informal caregiver stroke self. Validation of the revised bakas caregiving outcomes scale in. Subjective burden is a central variable describing the situation encountered by family caregivers. The patient health questionnaire depression scale phq9 measuring caregiver. To evaluate the impact of the family informal caregiver stroke selfmanagement ficss program on burden and life changes resulting from providing care among family caregivers of. Functional, psychosocial, and caregiver outcome data. Functional independence measure, bakas caregiving outcomes scale, reintegration to normal living index across admission, discharge, and followup. Caregiver outcomes included the hospital anxiety and depression scale hads, 17 generic hrqol eq5d5l questionnaire, 18 family caregiver quality of life famqol, 19 caregiver burden questionnaire for heart failure cbqhf, 20 and caregivers contribution to selfcare of hf index ccschfi. Responses are rated on a 5 point scale with scores ranging from 0 not at all prepared to 4 very well prepared. Using the bakas caregiving outcomes scale, which evaluates changes in the caregivers life as a result of providing care for the patient, 2231 71% reported no significant change, 431 12. Home care nurses rate a familys caregiving outcomes on three scales the frail elder outcome scale, the caregiver outcome scale, and the family outcome scale using a scoring range from 1 least positive outcome to 3 most positive outcome. In fact, this stress can build up to actually cause caregiver distressa situation where the caregiver may become more susceptible to other health risks such as high blood pressure, diabetes, and increased risk of stroke.
Dec 14, 2012 caregiver burden considerably affects the lives of families providing care to people with advanced cancer. The 10item short version of the burden scale for family caregivers bsfcshortbsfcs was developed to provide an economical measure of this variable. Three instruments were used in this study to collect data pertained to this study. To develop and psychometrically test the bakas caregiving outcomes scale bcos measuring changes in family caregiving outcomes in the stroke population. Search for abbreviation meaning, word to abbreviate, or lists of abbreviations. The bakas caregiving outcomes scale and a demographic sheet were administered to the caregivers. Farran, dnsc, rn, faanprofessor and the nurses alumni association chair in health and the aging process.
The bakas caregiving outcomes scale bcos was originally developed in 1994 to measure life changes in family caregivers of stroke survivors. The 15item bakas caregiving outcomes scale bcos measures caregiver. Psychometric testing of the revised 15item bakas caregiving. Caregiver burden was measured with the revised greek bakas caregiving outcomes scale, and psychological distress was screened with greek hospital anxiety and depression scales. Exploratory factor analysis provided evidence of construct validity as a unidimensional scale, as well as a multidimensional scale consisting of four subscales. The bakas caregiving outcomes scale bcos is an instrument designed to. Further research using the proposed conceptual model and the hfcql scale is warranted. Nearly always please circle the response the best describes how you feel. Stroke is one of the leading causes of severe, longterm disability, 1 with a majority of stroke survivors requiring the assistance of a family caregiver. The most popular abbreviation for bakas caregiving outcomes scale is. Psychometric testing with two convenience samples of family caregivers of stroke survivors ns 92, 104 was conducted using item analysis, cronbachs alpha, factor analysis, and hierarchical multiple regression. These two were recommended because of validity and reliability. This project is supported by the health resources and services administration hrsa of the u. The new hfcql scale showed potential as a quality outcome measure in hf caregivers, and might be used to screen hf caregivers for poor quality of life.
The z a r i t b u r d e n i n t e r v i e w scalelibrary. Stroke caregiver outcomes from the telephone assessment and. Baseline 1 week prior to participation in ptc program, 1 week after completion of the ptc program, and 6. Issues such as quality of life are now widely used in clinical trials and in patient management for assessing morbidity and the impact of. The original 10item bcos was improved by adding five items addressing financial wellbeing, level of energy, role functioning, physical functioning, and general health. To psychometrically test the revised 15item bakas caregiving outcomes scale bcos measuring life changes specifically resulting from providing care. Family caregivers of stroke survivors experience a variety of negative social, emotional, and healthrelated outcomes as a result of providing care.
The impact of an educational intervention in caregiving. Pain assessment and management strategies for elderly. Bakas caregiving outcome scale item means and percentages ratings of negative outcomes at 8 months after baseline item scores caregiver precedent is described by caregiving antecedent. Functional independence measure, bakas caregiving outcomes scale, reintegration to normal. Telehealth powerful tools for caregivers effectiveness. Caregiver burden is low nine to twelve months after. Revised scale for caregiving selfefficacy steffen et al.
Talk with your physician about ways that you can enhance balance in your roles. Tamilyn bakas, dns, rn, faha, faanassociate professor. Providing homebased stroke rehabilitation in ontario, canada volume 41 issue 6 l. Caregivers are often unprepared and overwhelmed with the responsibilities of providing care to stroke survivors, which can lead to negative physical and psychological effects purpose. Stroke caregiver outcomes from the telephone assessment and skillbuilding kit task tamilyn bakas, dns, rn, faha, faanassociate professor, indiana university school of nursing, indianapolis, indiana carol j. Validation of the revised bakas caregiving outcomes scale in greek caregivers of patients with advanced cancer receiving palliative radiotherapy. Request pdf psychometric testing of the revised 15item bakas caregiving outcomes scale family caregivers of stroke survivors. Crosscultural adaptation of the caregiver reaction assessment for use in brazil with informal caregivers of the elderly examined by a committee of judges, for its semantic, idiomatic, experimental and conceptual equivalencies, in order to establish a preversion brazilian cra. Time and difficulty of tasks provided by family caregivers. The present study examined the reliability and validity of the bsfcs. Bcos is defined as bakas caregiving outcomes scale very rarely. Caregiver burden was measured by the oberst caregiving burden scale ocbs and the bakas caregiving outcomes scale bcos. Depression severity was measured by the patient health questionnaire9 phq9. Burden scale for family caregivers in 20 european languages with this scale, valid assessment of subjective burden among family caregivers is possible all over europe using the same questionnaire.
Development and psychometric testing of the diabetes. Family caregiver outcomes in heart failure europe pmc. Outcome measures table interventions to support caregivers. Subscribing to this logic, caregiver and caregiving equate to the same, when in essence, the terms may represent two entirely different concepts. Carer impact the impact of a disease on a patient is an increasingly important outcome measure in medicine and healthcare. The bcos was developed to measure changes in caregiving outcomes. Pdf validation of the revised bakas caregiving outcomes scale in. Background the burden experienced by family caregivers is the most important caregiverrelated. Bakas caregiving outcomes scale west indian medical journal. Stroke caregiver outcomes from the telephone assessment. Assessing the impact of caregiver outcomes on function and.
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